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Mission & Team

Our Story

We are a 501c3 focused on raising awareness and money to fund research in hopes of a cure for Cholangiocarcinoma aka Bile Duct Cancer.  

Cholangio What?

Cholangiocarcinoma (aka Bile Duct Cancer) is a deadly, aggressive, rare cancer that is difficult to diagnose, often diagnosed at a later stage, has limited treatment options, and has a very poor prognosis in many cases. Once a cancer of mostly men over 65, Cholangiocarcinoma (pronounced Ko-Lan-G-O-Car-Sin-O-Ma), also known as CCA, is now seen in men and women, some as young as 9 years of age.   A study in JAMA predicts that liver cancer and intrahepatic cholangiocarcinoma will be the third leading cause of cancer death by 2040.  With drugs often taking 10+ years to get to market, even with accelerated approval, THIS. IS. A. CRISIS.

We formed Team Cure Cholangio to raise much needed research monies.  All proceeds from Team Cure Cholangio will be earmarked for research only. 

Meet the Team

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Jan Meyer

 

Chairman of the Board

Cholangiocarcinoma Warrior dx 2018

Mom stolen by cholangiocarcinoma in 2011

Appointed by Governor to the DE RDAC (Rare Disease Advisory Council) December 2023

Member of NORD’s Policy & Advocacy Task 

2022 Governor's Outstanding Volunteer Service Award Recipient

2021 Mark R Clements Award for Excellence in Community Impact (Cholangiocarcinoma Foundation)

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Jaye Pedante

 

Vice Chair

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Cholangiocarcinoma Warrrior dx 2022

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Lisa Johnson

 

CEO, Executive Director 

Cholangiocarcinoma Warrior Dx 2023

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Morgan
Worthington

Secretary

Cholangiocarcinoma 

Warrior Dx 2023

Jan's Caregiver
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Dean Meyer

Treasurer

Emeritus Board Members

Cameron Bolton
   2022-2024

Kate Bolton
2022-2024

STUDY IN JAMA: "Lung cancer (63 000 deaths) was estimated to continue as the leading cause of cancer-related death in 2040, with pancreatic cancer (46 000 deaths) and liver and intrahepatic bile duct cancer (41 000 deaths) surpassing colorectal cancer (34 000 deaths) to become the second and third most common causes of cancer-related death, respectively. Breast cancer (30 000 deaths) was estimated to decrease to the fifth most common cause of cancer death"

Upcoming Events

THURSDAY OCTOBER 3, 2024   6pm -9pm 

Fundraiser at
BBC TAVERN AND GRILL
4019 Kennett Pike,
Greenville, DE 19807
 
GUEST BARTENDER EVENT 
 
Funding Research in Hopes of a Cure 
 

SUNDAY DECEMBER 8, 2024

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Fundraiser at

Sunday December 8, 2024

Details coming October 2024

Quack Out Photos

To view photos click on the arrow pointing to the right...a box will pop up...copy and paste that link and you will be able to open photos

Photos & Videos

Videos

Please scroll to the right to see all of our videos

Join Us

YOU can help us make a difference!

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  • Please mail check donations to:

  • Team Cure Cholangio

  • 211 Haystack Lane

  • Wilmington Delaware USA 19807  

  •  

  • All donations are tax deductible -we will send you a receipt.  Thank you!

Please call 302-543-5225 or email us at teamcurecholangio@gmail.com

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