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Mission & Team

Our 
Story

We are a 501c3 focused on raising awareness and money to fund research in hopes of a cure for Cholangiocarcinoma aka Bile Duct Cancer.  

Cholangio What?

Cholangiocarcinoma (aka Bile Duct Cancer) is a deadly, aggressive, rare cancer that is difficult to diagnose, often diagnosed at a later stage, has limited treatment options, and has a very poor prognosis in many cases. Once a cancer of mostly men over 65, Cholangiocarcinoma (pronounced Ko-Lan-G-O-Car-Sin-O-Ma), also known as CCA, is now seen in men and women, some as young as 9 years of age.   A study in JAMA predicts that liver cancer and intrahepatic cholangiocarcinoma will be the third leading cause of cancer death by 2040.  With drugs often taking 10+ years to get to market, even with accelerated approval, THIS. IS. A. CRISIS.

We formed Team Cure Cholangio to raise much needed research monies.  All proceeds from Team Cure Cholangio will be earmarked for research only. 

For more information on all things cholangio please go to curecca.org (The Cholangiocarcinoma Foundation's Website) 

Meet the Team

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Jan Meyer

Chairman of the Board

Cholangiocarcinoma Warrior dx 2018

Mom stolen by cholangiocarcinoma in 2011

Appointed by Governor to the DE RDAC (Rare Disease Advisory Council) December 2023

Member of NORD’s Policy & Advocacy Task 

2022 Governor's Outstanding Volunteer Service Award Recipient

2021 Mark R Clements Award for Excellence in Community Impact (Cholangiocarcinoma Foundation)

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Dean Meyer

CFO/Executive Director

Jan's Caregiver

Mother-In-Law stolen by Cholangiocarcinoma

Vice Chair

Cholangiocarcinoma Foundation

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Kate Bolton

Secretary

Dad stolen by Cholangiocarcinoma in 2020

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Cameron Bolton

Secretary

PopPop stolen by Cholangiocarcinoma in 2020

Point of Light Award Recipient 2023

After Losing Her Best Friend to Cancer, 12-year-old Volunteer Works Hard to Raise Awareness - Points of Light

STUDY IN JAMA: "Lung cancer (63 000 deaths) was estimated to continue as the leading cause of cancer-related death in 2040, with pancreatic cancer (46 000 deaths) and liver and intrahepatic bile duct cancer (41 000 deaths) surpassing colorectal cancer (34 000 deaths) to become the second and third most common causes of cancer-related death, respectively. Breast cancer (30 000 deaths) was estimated to decrease to the fifth most common cause of cancer death"

Upcoming Events

SATURDAY MAY 18, 2024             
5th Annual Quack Out
Cholangio 5k Run/Walk to Crush Bile Duct Cancer

 Sign up today at Races2Run.Com
     live music, raffles, food trucks
         

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Fundraiser at

Details coming October 2024

SATURDAY DECEMBER 14, 2024
 

Photos

Photos & Videos

Videos

Please scroll to the right to see all of our videos