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Mission & Team

Our Story

We are a 501c3 focused on raising awareness and money to fund research in hopes of a cure for Cholangiocarcinoma aka Bile Duct Cancer.  

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Cholangio What?

Cholangiocarcinoma (aka Bile Duct Cancer) is a deadly, aggressive, rare cancer that is difficult to diagnose, often diagnosed at a later stage, has limited treatment options, and has a very poor prognosis in many cases. Once a cancer of mostly men over 65, Cholangiocarcinoma (pronounced Ko-Lan-G-O-Car-Sin-O-Ma), also known as CCA, is now seen in men and women, some as young as 9 years of age.   A study in JAMA predicts that liver cancer and intrahepatic cholangiocarcinoma will be the third leading cause of cancer death by 2040.  With drugs often taking 10+ years to get to market, even with accelerated approval, THIS. IS. A. CRISIS.

We formed Team Cure Cholangio to raise much needed research monies.  All proceeds from Team Cure Cholangio will be earmarked for research only. 

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Meet the Team

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Jan Meyer

 

Chairman

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Cholangiocarcinoma Warrior dx 2018

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Mom stolen by cholangiocarcinoma in 2011

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Appointed by Governor to the DE RDAC (Rare Disease Advisory Council) December 2023

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Member of NORD’s Policy & Advocacy Task 

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2022 Governor's Outstanding Volunteer Service Award Recipient

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2021 Mark R Clements Award for Excellence in Community Impact (Cholangiocarcinoma Foundation)

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Jaye Pedante

 

Vice Chair

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Cholangiocarcinoma Warrrior dx 2022

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Lisa Johnson

 

CEO, Executive Director 

​​Cholangiocarcinoma Warrior Dx 2023

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Morgan
Worthington

Secretary

Cholangiocarcinoma 

Warrior Dx 2023

Jan's Caregiver
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Dean Meyer

Treasurer

Emeritus Board Members

Cameron Bolton
   2022-2024

Kate Bolton
2022-2024

STUDY IN JAMA: "Lung cancer (63 000 deaths) was estimated to continue as the leading cause of cancer-related death in 2040, with pancreatic cancer (46 000 deaths) and liver and intrahepatic bile duct cancer (41 000 deaths) surpassing colorectal cancer (34 000 deaths) to become the second and third most common causes of cancer-related death, respectively. Breast cancer (30 000 deaths) was estimated to decrease to the fifth most common cause of cancer death"

FUNDRAISERS

Kendra Scott Fundraiser
Dec 7th - 9th online

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Event Photos

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Photos & Videos

Videos

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